2021 Program2021-06-17T15:16:52+01:00

ISBA 2021 Conference Schedule at a Glance 

The 2021 conference will be held virtually due to the uncertainty of the COVID-19 pandemic.


*All times are listed in Central time.

Conference, Day One
9:45 am - 11:15 amOpening Ceremony
11:20 am - 12:00 pmOpening Keynote Speaker The Respite Care Story: How Telling It Moves You ForwardStephanie Summerville, USA
12:00 pm - 1:00 pm Lunch Break
1:00 pm - 1:25 pmBreakout Session A
Tips and Tricks for Recruiting, Hiring and Keeping Quality CaregiversErica Andres, Self Advocate, USA
Intersection of Respite and Self-Directed Long-Term Services & Supports: State Policies and PracticesMolly Morris, Applied Self-Direction, USA
How do Parent Carers and Professionals Work Together in a Spirit of Co-production to Achieve Lasting Change and Improved Short Break ServicesJanet Leach and Gail Walshe, Contact, A National Charity for Families with Disabled Children, UK
Summer Respite Camp Immersion for Undergraduate Nursing StudentsKim Whitmore, Marquette University, Jennifer Fiegel-Newlon and Gail Krummen-Lee, University of Wisconsin-Madison, USA
As Safe As Possible - Empowering People with Disabilities to Say "No" to Exploitation and Human Trafficking - An Overview for CaregiversBrandon Chase, Community Living Essex County, Canada
1:00 pm - 2:10 pmMoving Respite Forward in New York StateDeana Prest and Abbey Lavazzo, New York Office for the Aging, Division of Policy, Planning, Program and Outcomes, Doris Green, New York State Caregiving and Respite Coalition, USA
1:30 pm - 1:55 pmBreakout Session B
A Comprehensive Model of Supporting People with Disabilities and Their Families from Birth to a Dignified Death on the Example of the Milicz Association of Friends of Children and Disabled People (MSPDiON)Malgorzata Biernacka,
Milicz Association of Friends of Children and People with Disabilities, Poland
Demand and Usage of Disability Respite Services in Ireland – Information for Policy from National Disability DatabasesPatsy Carr and Eithne Fitzgerald, Department of Health, Ireland, Sarah Fanagan, Health Research Board Dublin, Ireland
A Parental Perspective on Short Break Design in The Southern Health and Social Care Trust, Northern IrelandSophie Castell, National Autistic Society, United Kingdom
Telling Your RESPITE Story: The Art of Nonprofit CommunicationKen Smythe-Leistico, Carlow University, USA
Growing Along with ISBAPiotr Kuźniak & Magda Stempska, Imago Foundation, Poland
2:00 pm - 2:25 pmBreakout Session C
Give Me a Break – Easing the Responsibilities of CaregivingAnil Patil, Carers Worldwide, United Kingdom
Time for Living and Caring (TLC): A Virtual Coach to Maximize the Benefit of Respite Time UseRebecca Utz, University of Utah, USA
The Family Support Group: Parents as Partners in the Care of Children with Developmental DisabilitiesJill Sanghvi and Aditi Jha, Ummeed Child Development Center, India
Better Not Bigger- Creating Sustainable, High Quality Supports in an Individualised Funding EnvironmentJake Pearson and Susan Wallis, Interchange Illawarra, Australia
Together For ChangeTamara Kralj and Martina Pavic, Center for Rehabilitation Zagreb, Croatia
2:15 pm - 2:50 pmPartnerships for Caregivers in a No Wrong Door/ADRC Environment During a PandemicAlicia Hess Blater and Jessalyn Bridges, North Carolina Division of Aging and Adult Services, USA
2:55 pm - 3:30 pmLifespan Respite in Adult Day Health Centers - Successes and ChallengesJutta Ulrich, Arizona Caregiver Coalition, USA, and Brandon Baxter, Nacog Area Agency on Aging, USA
2:25 pm -3:30 pmExhibitor Time | Networking
Conference, Day Two
9:00 am - 9:45 am Exhibitor Time | Networking
9:45 am - 9:55 amWelcome & Conference Overview
9:55 am - 10:55 amOpening Keynote SpeakerSister Edna Lonergan, USA
11:10 am - 12:40 pmInternational Respite Policy PanelJoe Caldwell, USA, Emma Miller, United Kingdom, Jon Bartholomew, USA, Jo Chopra, India, Janet Leach, United Kingdom, Piotr Kuzniak, Poland, and Catharine Shanahan, Canada - Moderated by Kim Whitmore
12:40 pm - 1:30 pmLunch Break
1:30 pm - 1:55 pmBreakout Session D
Children, the Forgotten CaregiversJudy Wroda, Southwestern Independent Living Center, USA
Advancing Respite Research - Findings from the 2020 Respite Research SummitRay Kirk, ARCH National Respite Network and Resource Center, USA
Bringing Respite to Your CommunityVal Madsen, Respite Care Association of Wisconsin, USA
Collaboration at a National Level to Research, Develop, Test, and Measure a National Respite Provider Training Core Curriculum PilotLisa Schneider, Respite Care Association of Wisconsin, Kim Whitmore, Marquette University, USA
1:30 pm - 2:45 pmModels of Innovative and Exemplary Practices in Respite Care/Short Break Programs in the U.S. Casandra Firman and Susan Summers, ARCH National Respite Network and Resource Center, Barb Williams, ChildServe Respite - Johnston, Iowa, USA
1:30 pm - 2:45 pmInnovative Strategies for Working Across State Programs Providing Respite Services in MassachusettsLeanne Winchester, MA Lifespan Respite Program and University of Massachusetts Medical School Commonwealth Medicine, USA, Amy Nazaire, MA Lifespan Respite Coalition, USA
2:00 pm - 2:25 pmBreakout Session E
Assistive Technology: The Next Step for Working Smarter, Not HarderLaura Plummer, Wisconsin Department of Health Services, USA
Giving Respite During a Natural DisasterDennis Pieper and Sarah Gaffney, Voices of Care, USA
Share The Care™: An Evidence-Informed Approach to Ease the Stress and Isolation of Family CaregivingSheila Warnock, Sharethecaregiving Inc. Aka Share the Care, USA
Innovative Respite Care for Military Families with Children Having Special NeedsAndrew Coates, Child Care Aware of America, USA
2:30 pm - 2:55 pmBreakout Session F
A Musical JourneyMandy Hansen, Tennessee Respite Coalition, USA
Building a Full Life: Today, Tomorrow and Beyond 18. Expanding the Impact of Respite SupportsSusan McKee and Cindy McPhedran, Family Respite Services, Windsor-Essex, Canada
Family Caregiver Wellbeing: How Care, Compassion and Understanding Cost so Little and Mean so MuchJoanna Griffin, Affinity Hub, United Kingdom
Providing and Receiving Respite Care Safely During the COVID-19 PandemicKim Whitmore, Marquette University, USA
2:55 pm - 3:30 pmCreating Respite Where it Doesn't Exist: A "Gap-Filling" Person-Centered Approach to RespiteJamie Ahumada, Nevada Aging and Disability Services Division, Cheryl Dinnell, NV Lifespan Respite Care Coalition, USA
2:55 pm - 3:30 pmExhibitor Time | Networking
4:00 pm - 5:30 pmVirtual Happy Hour
Conference, Day Three
9:00 am - 9:45 amExhibitor Time | Networking
9:45 am - 9:55 amWelcome & Conference Overview
9:55 am - 10:55 amOpening Keynote SpeakerDr. Vibha Krishnamurthy, India
11:00 am - 11:25 amBreakout Session G
Caregiver Respite – Thinking Outside the BoxJane Mahoney, Greater Wisconsin Agency on Aging Resources, USA
The Building Respite Evidence and Knowledge (BREAK) ExchangeTyler Engel, Barrier Busters Designs, Kim Whitmore, Marquette University, USA
Effective Practices When Working with Families of Latino HeritageHector Portillo, Padres E Hijos En Acción, USA
11:00 am - 12:15 pmAdvocacy to Action – Advancing State Respite Funding Across the U.S.Jon Bartholomew and Helen Marks-Dicks, AARP, USA
11:00 am - 12:15 pmLessons Lifespan Respite Washington Learned from Collaborating with Diverse Groups of Caregivers Prior to and Mid-Pandemic Dana Allard-Webb, Rosalyn Alber, and Geene Delaplane, Aging & Long-Term Support Administration, Washington State Department of Social and Health Services, Tracy Kahlo, PAVE and Lifespan Respite Washington & Rosalyn Alber, USA
11:30 am - 11:55 amBreakout Session H
How ISBA Connects the World – A Danish-German Sailing-WeekendAndreas Karger, VBS Bethel, Respite Care Haus Brucke, Germany
A PhD in Caregiving: Designing a Family UniversityDr. Jo Chopra-McGowan, Latika Roy Memorial Foundation, India
Multigenerational Respite: Moving Forward through Kinship CaregivingCarrie Savage, Catholic Charities Denver, USA
11:30 am - 12:45 pmThe Cost of Moving Forward: Calculating the Cost of Short Break/Respite ServicesCasandra Firman, ARCH National Respite Network and Resource Center, MaryJo Alimena Caruso, FRIENDS National Resource Center for Community-Based Child Abuse Prevention, USA, Catharine Shanahan, Family Respite Services, Canada
12:00 pm - 12:25 pm Breakout Session I
Using Respite to Reach Therapeutic GoalsSarah Stonier, CHEO, Canada
Supportyourway.ca - A Central, Multipurpose Website and Database for Respite and Direct Support ServicesCarolyn Harris, Empower Simcoe, Canada
Claude Moore Precious Time - A Mutually Transformative Respite Care ProgramMelissa Leisen and Eric Schmucker, James Madison University, USA
12:25 pm - 1:30 pm Lunch Break
1:15 pm - 1:50 pm*Virginia Lifespan Respite Voucher Program: Successes, Challenges and Lessons LearnedNick Slentz and Liza White, Virginia Department of Aging and Rehabilitative Services, USA
1:30 pm - 1:55 pm Breakout Session J
Asking for Respite is a Sign of Strength as Families Raise Their Young ChildrenAmy Kendal and Joanne Deuter, Maryville Crisis Nursery, USA
1:30 pm - 2:45 pmCultural Competency & Diversity Planning: A Pathway Moving Respite ForwardJed Johnson, CARF International, Kesha Carter, Coordinator Care Services, Inc., USA
1:30 pm - 2:45 pmSiblings Journey Forward: Addressing the Needs of Caregiver Siblings of People with Disabilities from Childhood through AdulthoodHarriet Redman, WisconSibs, Inc., USA
1:30 pm - 2:15 pmStorytelling In the Work Place: A Tool for TransformationStephanie Summerville, USA
1:30 pm - 2:45 pmEngaging the Broader Community on Innovative Ways in “Moving Respite Forward”Jeff Keilson, Advocates, Inc, Pam McKillop, Autism Alliance of Metrowest, USA
1:55 pm - 2:30 pmAdvancing the Breakroom in South Carolina's Faith CommunitiesJoe Ward, Kathy Mayfield-Smith and Nicholas Julian, SC Respite Coalition, USA
2:00 pm - 2:25 pm Breakout Session K
How Rewarding Work Uses its Web-Based Matching Service, Unique Approach to Recruitment and Model of Collaboration to Deliver Respite OpportunitiesDafna Krouk-Gordon and Jeff Keilson, Toward Independent Living and Learning, USA
2:30 pm - 3:00 pm Breakout Session L
Co-Design: Accelerating Transformation of Respite & Short Breaks by Putting People & Families in the Driver’s SeatJaneen Halliwell, People Minded Business, Jennifer Warnell, Pina Bresciani, Adrineh Bennett Community Living Toronto, Canada
2:35 pm - 3:10 pmInnovative Insight: Understanding Your Needs by Identifying Yourself as a CaregiverMegan Schwalm, Tennessee Respite Coalition, USA
2:45 pm - 3:30 pm Exhibitor Time | Networking
Conference, Day Four
9:15 am - 9:25 am Welcome & Conference Overview
9:25 am - 9:45 am Amazing Grace ChorusThe Wisconsin Alzheimer's Institute "Amazing Grace" Chorus®
9:45 am - 10:00 am Break
10:00 am - 11:00 am Global Response to Respite and Caregiving in a Post-Pandemic WorldC. Grace Whiting, USA, Amanda Batten, UK, Amy Coupal, Canada, Don Williamson, Scotland, Jaia Peterson Lent, USA - Moderated by Kim Whitmore
11:00 am - 11:45 am COVID-19 & Respite Round Table Discussions
11:45 am - 12:00 pm Round Table Discussions Report-out
12:00 pm - 12:15 pm Closing Remarks & Announcement of Location for ISBA 2023